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The watery world of a little Figtree boy

10 Mar, 2010 06:27 AM
A pesky little molecular glitch makes life tough for this little boy whose thirst is so fierce he drinks in his sleep.

Liam Walter, 5, of Figtree, has a disorder known as nephrogenic diabetes insipidus, which interferes with his kidney's ability to conserve water.

Sufferers urinate on average every half an hour and need to constantly replenish their fluids.

Liam, who was diagnosed at 12 weeks, must have easy access to water day and night as his thirst is unrelenting and intensifies if he eats foods containing salt.

"He has just started school and has to carry a large water bottle around his neck that he fills constantly during the day," his mother Sherin said.

Apart from a low-salt diet and 12 lots of daily medication, there is not much Liam or his parents can do to relieve the symptoms.

However, Mrs Walter said his plight could be vastly improved if there were more low-salt products on supermarket shelves.

"Liam's condition is rare, but there are tens of thousands of people who would benefit from low-salt diets and there is so little for them in terms of food products," she said.

Mrs Walter said Australia was lagging behind countries such as the United States, which - according to her research - has supermarkets dedicated to low-salt food products.

"We have plenty of gluten-free products available, but for kids like Liam it's either deprivation or suffer the consequences of eating salty foods," she said.

"Something as simple as a low-salt snack or kiddies' cereal would be appreciated by families like ours."

Mrs Walter said it was getting harder for Liam, who is now out mixing with other kids and wants to fit in.

"A small sausage roll will send him running to the tap until he's so bloated he vomits," she said.

"But we have to step back and let him discover what he can and can't eat - it's too distressing to ban everything and it wouldn't work."

Mrs Walter tries to cook low-salt alternatives to everyday food products but even bicarb soda in cakes has enough sodium to intensify Liam's thirst.

"We had chicken the other night and the crumb coating must have had a high salt content because Liam was up all night drinking and weeing," she said.

"We line his bedside table with bottles of water and often he'll reach out for it without fully waking up."

It is Liam's sixth birthday on Monday. He will spend the day with family, eating carefully prepared food.

Wollongong Hospital's renal dietician Amy Haantjens agreed that it was difficult to find foods for a low-salt diet, particularly for children, but that food producers were starting to get the message.

"They say the public has a certain flavour expectation and they are therefore wary to go too fast too soon for fear of losing business," Ms Haantjens said.

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Date: Newest first | Oldest first
We have so many great food outlets in the Illawarra, so maybe they should take up the challenge of developing low salt foods.
Posted by blue, 10/03/2010 8:51:44 AM, on Illawarra Mercury
My heart goes out to Liam and his parents. I know the frustration of shopping for low salt items at the supermarkets. I have Meniere's and I am on a low sodium diet, and it is frustrating because most tinned items are loaded with salt, including fresh ravioli etc. For Liams parents Meniere's Australia do sell some low sodium items, and a website called Meniere's talk forums have alot of low salt recipes. I agree with Mrs Walters, there are alot of people that can benefit greatly from low sodium diets, including those that suffer from high blood pressure, when I am able to I sent letters to companies asking for Lo So products, because there is a large market out there for these foods.
Posted by Freckles, 10/03/2010 9:01:09 AM, on Illawarra Mercury
There should also be a greater range of SUGAR FREE and LOWER sugar products in supermarkets. 'gluten free' and 'low fat' seem to be the thing. There are a HUGE number of diabetics out there - and increasing. Besides we could do with less - there's enough natural sugars.
Posted by starfish, 10/03/2010 9:26:48 AM, on Illawarra Mercury
You are a brave boy Liam, best wishes for a wonderful 6th birthday on Monday ! I must admit to not knowing about this rare condition until I read the article. A plea to Coles/Woolies/Aldi - could you PLEASE try to source some more low salt products? If the US can do it, we can do. A low salt diet will benefit most of us and for those who need it, they can always add salt to their food. I wish Liam and his family all the best in health and happiness.
Posted by Cathy B, 10/03/2010 12:17:35 PM, on Illawarra Mercury
If Liam's family don't already own a computer they MUST get one and learn how to use it. They can get all the help in the world from a few Australian websites. In www.saltmatters.org they can click on Email Discussion Group and read all about this helpful group and how to join it. In www.findlowsaltfood.org they can see pages and pages of low salt foods with colour pictures of all the labels showing them what to look for.
Posted by Dr Trevor Beard, 14/03/2010 8:06:40 PM, on Illawarra Mercury
CORRECTION. The correct web address for a huge choice of low salt foods ends in info (not org). It is: www.findlowsaltfood.info and remember it is food (not foods)
Posted by Dr Trevor Beard, 15/03/2010 6:56:38 AM, on Illawarra Mercury
Children such as Liam demonstrate the need even more for a 'traffic light' style of food labelling, in which low salt foods can be easily identified with a green light on the label. If this system was in place, I'm sure food companies would want to see a green light on their products, and then develop more low salt foods. Unfortunately sections of the industry are holding this back by opposing the move. To make it happen, and to help people such as Liam we need more political will to make it happen, and more support from food companies.
Posted by Paul, 15/03/2010 7:00:34 AM, on Illawarra Mercury
My son, Dominic, also has NDI. It usually takes a couple of hours in the grocery store to pick the right foods, not to mention, becoming a creative cook. We do not go to restaurants, because there is NOTHING for him to eat. He is 5, so his belly doesn't require that much food...yet! There are many options, but you need to research. It is dangerous for him to "experiment" with eating high-salt foods and could permanently damage his kidneys. Processed foods?!? Not is our vocabulary. And the rest of the family? Grateful.
Posted by Dom'sMom, 19/03/2010 2:30:57 AM, on Illawarra Mercury
LOW SALT OR NO SALT PRODUCTS!

This child's mother is right in that it is difficult to buy low salt produ cts. It is virtually impossible to buy no salt products.

Remember the original Smith's Chips came unsalted with a small quantity of salt in screwed up paper in a bag,? so people could use various amounts of salt or none at all.


Posted by Fergie, 3/03/2011 7:25:00 AM, on Illawarra Mercury

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Liam Walter, 5, lives with a rare condition that means he has to stay close to a ready water supply at all times. Picture: KEN ROBERTSON
Liam Walter, 5, lives with a rare condition that means he has to stay close to a ready water supply at all times. Picture: KEN ROBERTSON

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