Dapto boy Jackson Tasker hates being wrapped in bandages but that's the only way to keep him, and those around him, safe from infection.
The 10-year-old's body has been covered in ulcerated sores for half his life, having picked up a staph infection while in a Sydney hospital for minor surgery when he was four.
An immune deficiency means he has not been able to kick the chronic infection, and the combination of both has seen him admitted to hospital more than 50 times since then.
To help Jackson's mother Michelle with medical expenses, family friend Tammy Burke has organised a fund-raiser on Friday night at the Cabbage Tree Hotel in Fairy Meadow.
Funds raised on the night will also help Ms Tasker, a single mum of four boys, build a deck around the family home's above-ground pool to give her "water baby" access to one of life's simple pleasures.
"Jack loves the water but he's not able to swim in public pools because his immune deficiency leaves him open to infection - plus the sores on his skin are contagious to others," she said.
"Easy access to the pool at home is essential as he has had a port inserted in his chest for intravenous antibiotics, and he's nearly ripped this out trying to get in our pool.
"I've always resisted the idea of a benefit night, but if it can give Jack access to a pool where he is safe from infection, and infecting, then that's great."
Ms Tasker said it would be great to give Jackson a bit of "normality" as he missed out on so many activities taken for granted by other kids.
"He's been so badly infected that as well as the sores, his eyes would fill with pus, his face would swell and his sinuses would be blocked.
"An operation to drill out his sinuses has relieved some of his symptoms but he still has sores which take months to heal and he suffers from endless bouts of pneumonia.
"So he doesn't go to parties, he's never stayed over at a friend's house, he can't go to indoor play centres or take part in organised sports."
Despite this, Ms Tasker said her son remained "courageous".
"There's no cure for what he has, no answers, but he never complains," she said.
Leigh Stewart will be MC on the benefit night, which will include raffles, auctions and a trivia competition.
Tickets are available at the Cabbage Tree Hotel; or call 0409 701 501.