Australian writer, comedian and disability activist Stella Young was an inspiration to many - none more so than the 11-year-old Illawarra girl who shares the same brittle bone disorder.
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Ms Young, who died at the age of 32 in December, lived life to the fullest and that's exactly what Beth Cooper-Wares intends to do.
Life expectancy for the severe form of the disorder that the Stanwell Park girl suffers is shorter than average, but her bucket list is 101 items long.
Among other things the year 6 student wants is to wheel around Amsterdam for the day wearing clogs; she'd love to eat 10 different flavours of gelato in Italy; kayak with killer whales off the coast of Canada or simply lie in a field of sunflowers.
Her mother, Katie, is helping her little girl tick off those items by planning the adventure of a lifetime for them both.
Nearly $10,000 has so far been raised for the trip through crowd funding website Go Fund Me, and the duo will sell up all their earthly possessions and jet off in May.
What's more, every time Beth ticks an item off her list she plans to "pay it forward" by carrying out a random act of kindness for someone else in need.
"Neither of us felt comfortable taking something without giving back, but the idea of paying it back makes us feel joyful and lets us show our gratitude," Ms Cooper-Wares said.
Beth was born with Osteogenesis Imperfecta Type III and has had more than 35 broken bones, countless treatments and operations, months in hospital in traction or full body casts and a whole world of pain. She has limited mobility, is wheelchair reliant and has many other physical conditions linked to her disorder that are likely to worsen.
"The idea for the journey came out of my concern to what the teenage years will bring," Mrs Cooper-Wares said.
"She's lived in a beautiful community where she's been quite protected, but as she gets into her teen years and her world opens up, I'm concerned about the challenges she will face.
"I thought if I could give her a really big experience that would help her overcome those challenges and give her an extra boost of confidence in her uniqueness, that would be wonderful."
Mrs Cooper-Wares will give up her job as an environmental educator, sell everything she owns apart from a bag of clothes for her and Beth.
Beth will write a blog along the way to inspire others.
"Beth inspires the people who meet her - she never complains about what she can't do, instead finding ways to develop and strengthen the things she can do.
"Her joy is contagious. It is vital that this joy is kept alive."
The pair also hope their journey will highlight the need to improve the world for people with disabilities.
Visit www.gofundme.com/bethsadventure if you'd like to help.
