Fun Run raising much needed funds for sick kids

By Peta Gilbert
Updated December 4 2016 - 1:09am, first published 12:00am
Lila Dillenbeck suffers from CHARGE syndrome, a rare disease that has left her deaf in both ears, visually impaired and with low muscle tone Photo: Supplied
Lila Dillenbeck suffers from CHARGE syndrome, a rare disease that has left her deaf in both ears, visually impaired and with low muscle tone Photo: Supplied
Natalie and Lila Dillenbeck who will turn 3 this month, promoting the Santa Fun Run, in Centennial Park.  Photo: Janie Barrett
Natalie and Lila Dillenbeck who will turn 3 this month, promoting the Santa Fun Run, in Centennial Park. Photo: Janie Barrett
Lila Dillenbeck who will turn 3 this month, with the Variety Santa Clauses.  Photo: Janie Barrett
Lila Dillenbeck who will turn 3 this month, with the Variety Santa Clauses. Photo: Janie Barrett

Lila Dillenbeck is no stranger to hospitals. In just three short years of life she has already been to 186 medical appointments and undergone open heart surgery.

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