Adem Dani has spinal muscular atrophy but his parents are hoping for a 'life-changing’ drug to be fast-tracked onto the PBS

Agron Latifi
Updated February 14 2018 - 9:40am, first published February 13 2018 - 6:00pm
Adem Dani (centre) with his brothers Zain and Ben.
Adem Dani (centre) with his brothers Zain and Ben.

The almost constant cheeky smile on the face of Adem Dani hides a painful truth.

Subscribe now for unlimited access.

$0/

(min cost $0)

or signup to continue reading

See subscription options
Agron Latifi

Agron Latifi

Sports Reporter

Wollongong born and bred. I love reporting about the Illawarra region and have been doing it for more than 20 years. I've moved into sport recently after covering the education round for the last five plus years for the Illawarra Mercury. It's been a great pleasure.

Get the latest Wollongong news in your inbox

Sign up for our newsletter to stay up to date.

We care about the protection of your data. Read our Privacy Policy.