The outpouring of grief and love for Chloe Saxby after news of her death on Wednesday continues with a new fundraising page set up to support the family, and students from her school planning to dress in rainbow colours on Friday.
The 12-year-old Woonona girl made such a huge impact on the community and left such a legacy that $5000 was raised within hours of a Chloe the Rainbow Warrior page being launched by long-time Saving Chloe Saxby advocate and volunteer Renee Leighton.
On the My Cause page Ms Leighton set a target of $30,000 and said money raised would aid the Saxby family in the loss of their daughter.
The page reads;
"Beautiful Chloe, has now a rainbow of her own and will be high above us in the sky looking down, continuing to sprinkle her beautiful colours on us all.
"We have been blessed by her presence from near and far, her smile, fun-loving nature and determined fighting spirit in her battle against Vanishing White Matter Disease.
"She truly was inspirational to us all.
"As close friends of the family, we have decided we need to rally together to help out our dearly loved Saxby's.
"They need our love and support more than ever after the devastating loss of their beautiful daughter. The relentless time they have spent raising awareness and funds has resulted in many financial sacrifices.
"We truly appreciate how much the community have contributed to the Saving Chloe Saxby so far, but this page will be purely dedicated to the Saxby family so all their needs are met and Chloe can have the send-off she deserves."
Aware of how the community embraced Chloe during her short life mum Nyree Saxby said the family have begun the task of trying to sort out what they can do for her funeral to give everyone a chance to say goodbye in the present Covid environment.
Mrs Saxby said the family only got home from Sydney on Wednesday night and don't have anything planned yet. She said walking in the door without Chloe was so hard and it just didn't seem real she was gone.
"We need more than 100 for something as special as saying goodbye to a child who was loved and supported by so many," she said.
Mrs Saxby's sister Nicole Laurie said the family was deeply moved by all the messages and comments about Chloe.
Mrs Laurie spent most of Thursday trying to try to see if the NSW Government would be willing to consider an exemption so more people can attend the funeral.
"We are in the process of organising a funeral service. Our first priority is trying to get an exemption so we can have more than 100 people attend, as we feel that we would be depriving the community of their chance to say goodbye to a little girl they all fought so hard to save and fell in love with," she said.
"The entire community were behind the Saving Chloe Saxby campaign, driven by her family and for that we are forever grateful.
"Nyree, Grant, Madeleine and family have been so incredibly touched by the outpouring of love from the community.
"It brings us warmth to see the huge impact Chloe and our fight to save her has had on the local community and beyond.
"Although we are still in shock and deeply grieving at this time, we really appreciate all of the love and support our beautiful community has provided us over the years and especially now.
"We were often reduced to tears from the random acts of kindness from kids selling their bikes and donating their pocket money to incredible people organising large scale events for us.
"Although we didn't manage to find the cure in time to save Chloe, we know that the global awareness, research and fundraising that the community got behind, will help to save future generations. And this is the legacy that Chloe leaves behind.
"We feel as though Chloe didn't just belong to our family, she belonged to the whole community. Our beautiful little girl touched the lives of many, not just locally but globally. Chloe inspired not only us but many others with her kind, loving nature and big heart."
Mrs Laurie said Chloe touched the hearts of so many, that the family has received many messages from people asking how they can help, which was really beautiful.
"Nyree and Grant are still committed to funding the research into a cure at IHMRI for a period of time, so in lieu of buying flowers or gifts, if you would like to help with this, you can do so on the Saving Chloe Saxby website and all proceeds go solely to research into VWM Disease," she said.
"Some close friends of Nyree and Grant wanted to help them directly with funeral costs and to allow them time to grieve through this difficult period as they have not been earning an income whilst Grant has not been able to work recently with all of the hospital stays. We are forever grateful for all of your love and support the community have shown us over the years."
Woonona East Public School principal Emily Corcoran said after the idea for a Rainbow Day was raised on Wednesday the students took control and started driving the fundraising day.
Ms Corcoran said Wednesday was hard for all the kids because Chloe is so much loved and the school community want to support the family at this sad time.
"The students are doing much of the groundwork now," she said.
"All Chloe's friends are looking forward to putting a day together that is in memory of her and all the positive things about her.
"They are doing exactly what Chloe has always done by doing positive things in a negative.
"All the children are going to be wearing mufti and bringing a donation that is going towards the foundation.
"The whole school community is extremely on board. They are always wanting to do everything they can to support the Saxby family."
Ms Corcoran said rainbows were synonymous with Chloe who put so much colour into the world.
Which is why the Saving Chloe Saxby Foundation logos have all had rainbows in them.